Fultusi 1992-2002

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" The Christian does not consider death to be the end of his life, but the start of new journey...!!!"













A Few Words about Thalassemia

May 8 is globally celebrated as `International Thalassemia Day`

It is an inherited blood disorder in which the red blood cells contain a reduced amount of haemoglobin, or in severe cases, a lack of haemoglobin in the cells.

The disorder which requires regular blood transfusion can be cured if the patient gets the right donor for a bone marrow transplant. However, the success rate remains awfully low at 3 to 5 percent.

A patient should first get the right match then there should be advance medical equipments available at the medical centre near the patient and then he should be having deep pockets to get the transplant done.

A thalessemic patient between the age of one to five years needs one unit of blood every month, between the age of five to ten-two units every month are needed, between the age of 10 to 15-three units are needed every month and an adult thalassemic needs four units of blood every month.

Types Of Thalassemia:

There are two types of thalassemias: Alpha and Beta. Alpha Thalassemia is a blood disorder that reduces the production of hemoglobin. Beta Thalassemia It involves decreased production of normal adult hemoglobin (Hb A), the predominant type of hemoglobin from soon after birth until death.

What Is Thalassemia?

Thalassemia is a group of inherited blood disorders that affect the body's ability to produce hemoglobin and red blood cells - patients have a lower-than-normal number of red blood cells in their bodies and too little hemoglobin. In many cases the red blood cells are too small. Our red blood cells carry hemoglobin. Hemoglobin, a protein, carries the oxygen we breathe in through our lungs and transports it to the rest of the body. A spongy material inside some of our bones - bone marrow - uses iron that our body takes from food and makes hemoglobin.

How Can Thalassemias Be Prevented?

  • WE CAN PREVENT THALASSEMIA

  • Family genetic studies may help find out whether people have missing or altered heamoglobin genes that cause thalassemias.

  • If you know of family members who have thalassemias and you're thinking of having children, consider talking with your doctor and a genetic counselor. They can help determine your risk for passing the disorder to your children.

Our Aims:

  • We Want To Make People Believe that Thalassemia is preventable.

  • Our main motto is to make each people aware of the basics of Thalassemia. If people come to know about the disease, they can easily be cautious and will consult the doctors.

  • We have to make the world Thalassemia-free.
  • Our organization mainly focuses on campaigning to aware the common people about this disease.
  • We requset all the repceted citizens of our society to join us and we can make the world Thalassemia-free together.

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Symptoms

01. The most severe form of alpha thalassemia major causes stillbirth
death of the unborn baby
02. Children born with thalessemia major (Cooley's anemia) are normal at birth
develop severe anemia during the first year of life
03. Bone deformities in the face
04. Fatigue
05. Growth failure
06. Shortness of breath
07. Yellow skin (jaundice)
08. Persons with the minor form of alpha and beta thalassemia have small red blood cells